In October 2014, Nick noticed a tremor in his right hand he couldn't control. He started losing his vision and became weak on the right side of body. We soon discovered an inoperable tumor located deep in his brain - too deep to safety remove surgically. At the young age of 32, our sweet, happy-go-lucky Nicholas Masculino faced the fight of his life against the most aggressive form of brain cancer, Glioblastoma Multiforme (GBM) Grade 4.
For 2 years, Nick treated and managed life with cancer. He was beating the odds with the tumor shrinking from the size of a golf ball to size of a peanut M&M. He regained his health and strength - it was nothing short of a miracle.
At the beginning of November 2016, Nick found himself in the emergency room again after feeling pain in his lower back and trouble with his nerves. We discovered 3 new tumors in Nick's spinal cord which metastasized from his brain.
Doctors only gave Nick several months to live, but after radiation therapy and starting a new chemo, his tumors shrank and he defied all expectations by continuing to live nearly a full year with spinal metastesis.
At the end of September 2017, after attending getting married to Bryant and their 9th consecutive burn, Nick began feeling symptoms of his spinal tumors again. MRIs showed that his tumors returned and no more treatment options were available to him. In November 2017, Nick was admitted to home hospice care, where his family and friends focused on providing Nick with the most comfort in this final phase of life.
Nick passed quietly at home in San Francisco at 11:03pm on Wednesday, January 24th after 3 years and 3 months battling brain and spinal cancer. In his final hours, he was surrounded by his mother, his husband Bryant, and many of his closest friends who showered him with love and shared affirmations, stories, laughter, prayers, and music.
As Nick had instructed, his remains will be cremated and scattered in Hawai’i (the home of his youth) and in Black Rock City (the home of his passion). We also plan to have some housed locally for all to be able to visit, remember, and honor his life and legacy in the years to come. A memorial service will be held on February 24th in San Francisco. Please join the "We Love Nick" Facebook group to get more information about the service, and also to share photos and memories of Nick.